Building Your Support Team

Once you are diagnosed with a Chronic illness, life comes at you fast. There are tests, doctors, medications, procedures, treatment, etc., to be discussed … decided upon … and juggled. And the best way to manage it all is to build a “Support Team”. But how does that work? Who makes the cut? Let’s talk about that …

 

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Family and friends can be wonderful things. But, in reality, not all families provide strong support systems and not all friends are up to the task. This is your health that we are talking about. Anyone with a Chronic illness will tell you that managing your condition is vital. Your privacy is also involved. Which brings us back to who makes the cut:

  • Doctors are a given.
  • Disease Information. This will help you to make decisions & build your team.
  • Therapists and/or Nutritionists may be needed to get you started or even long-term.
  • Best Buds, i.e. spouse, partner, family, friends, a neighbor, or even a co-worker. People you can count on to help you emotionally and/or physically. This should be  dependable & responsible individuals. They should also know how to practice discretion. If you have more than one in your life … “Yea!”
  • Support Groups can be found in most areas — even online (hint, hint, hint). These are very beneficial if your Best Buds are limited or not living close-by.
  • A Good Pharmacy & I lean toward national chains. If you forget to pack a prescription, lose one, etc., it’s easier to get it replaced. Most offer mail-delivery, too.

Building your team may sound like a daunting task, but it’s not as difficult as you may think. Specialists and surgeons will be referred, if needed, by your physician. This is also true for therapists, nutritionists, etc. Your physician can provide information about your disease, too. And there’s a wealth of good information on sites like Mayo Clinic, WebMD, CDC, etc. Your “Best Buds” are the easiest to pick, because you know them and they know you. You also know their strengths and weaknesses. Some will be better for a specific task than others. So, talk to them. Discuss your condition as well as any help you may need, i.e. transportation, errands, watching the kids for a couple of hours, etc. Support Groups may be of interest to you, or they may not. The choice is yours and depends solely upon your needs and preferences. A good pharmacy is something that you don’t really think about, until it becomes a constant part of your life. If you don’t have one, now is the time to locate one. With any Chronic illness, you will need it. This is your new normal.

It’s a lot to take in. I know. Once diagnosed, you can easily feel overwhelmed … scared … frustrated … depressed … even angry. That’s why your support team is so important. Together, you can and will effectively manage your condition. Millions do so, every day. Last but not least, try not to let your imagination get the best of you in the worst of ways. Don’t worry yourself over things that may never happen. Don’t allow worst-case scenarios to keep you awake at night. Cross that bridge, when and if you come to it. You have better things to do, than dwell on the negatives. Prioritize. Focus. Embrace optimism. And live!

 

Reference Links:

https://www.mayoclinic.org/diseases-conditions

https://www.webmd.com/

https://www.cdc.gov/chronicdisease/about/index.htm

https://www.psychologytoday.com/us/groups/chronic-illness

https://medicalxpress.com/news/2018-07-groups-boost-health-chronic-conditions.html

http://www.ihi.org/resources/Pages/Changes/SelfManagement.aspx

https://medlineplus.gov/ency/patientinstructions/000602.htm

https://www.caregiver.org/resources-health-issue-or-condition

8 Ways to Build a Support System When You Feel Defeated and Alone

*Photo by Sheri Hooley on Unsplash

Author: livinginthegardenofoptimism

Hi, there! I wear many hats, and occasionally an apron,as most women do. I'm a Christian, wife, mother, writer, essential worker, volunteer, patient advocate and blogger. My focus is on providing awareness about Chronic illnesses and offering encouragement to those who battle them. Dare to care!

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