When you or a loved one is sick, there’s a lot to juggle. Tests. Medications. Sometimes, surgical procedures. There’s endless questions to ask. Answers that are desperately needed. And no matter how earnestly you address this upheaval, you are bound to forget something. In healthcare, your crisis is just another day at work. But for you as well as your loved ones, it’s life-altering. Scary. Often times, it may seem easier to just nod and follow along. You may find yourself even doing so, despite the concerns that are keeping you awake at night. Perhaps, you just don’t want to make a fuss? Appear difficult? Take up too much of the doctor’s time? Anyone who has ever been diagnosed with a Chronic illness understands your hesitation, confusion, fears. You want to get well — not make waves. But this isn’t Obedience Training for a new puppy. This is your life — your health. And you have rights. It’s important to know them!
Back in the summer of 1970, a grass-roots organization called The National Welfare Rights Organization (NWRO) drafted a document of 26 requests regarding healthcare treatment. This became the first Patient’s Bill of Rights. Their action came on the heels of a revision to hospital standards, by the Joint Commission on Accreditation of Hospitals. After several months of negotiation, many of the requests were included in the revised hospital standards by JCAH. In 1972, the American Hospital Association adopted a Patient’s Bill of Rights for operational use. By 1988, all 50 states had adopted a form of the Patient’s Bill of Rights to protect patients. The American Medical Association (AMA) followed suit, a year later. In 1992, the Patient’s Bill of Rights was acknowledged Federally and updated. Another revision took place, in 2010, on the Federal level. And most recently, at the Federal level, a revision was added this year to include the “Right To Try” for terminally-ill patients.
According to the World Health Organization (WHO), most nations have a form of a Patient’s Bill of Rights that stem from the Universal Declaration of Human Rights (1948). They may vary slightly, but all were created to protect the patient. This is something to remember, when traveling abroad.
Yet, despite these many actions, Patient’s Rights are still violated. In 2016, the National Institute for Patient Rights (NIPR) conducted a study to see just how well the system works. Their findings comprised a list of the Top Ten violations of Patient’s Rights:
- The failure to communicate
- Adequate presentation of treatment options.
- A lack of respect for advance directives.
- Conflict between medical team & patient/advocate.
- The right to know hospital charges and payment methods.
- The right to review the patient’s bill.
- Knowledge of hospital resources, including the complaints & grievance process, patient representatives, or ethics committee.
- The right to know the identity & professional status of those working on the patient.
- The right to review medical records, account information, etc.
It’s difficult trying to juggle the overwhelming news of a diagnosis, treatment, etc. But the process will be easier, in the long run, if you aren’t afraid to ask questions. Patients have rights. It’s a matter of professional ethics and law. Caregivers, advocates and/or family members can help by discussing a patient’s concerns with them. Make notes. That way, questions will be answered to the satisfaction of the patient. And if they aren’t, take action. Your health, or the health of a loved one, is too precious to leave to chance.
* Photo by Mariano Rossi on Unsplash